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Learn more about secondary breast cancer with our helpful download guides.

1. Stages of breast cancer guide Download guide
2. Biomarkers guide Download guide
3. Talking with others guide Download guide
4. Caring for a loved one guide Download guide
5. Terminology guide Download guide
6. Appointment guide Download guide


Collaborations with
patient groups and patients

Moments That Count is a Novartis initiated project that has gathered insights from real patients living with breast cancer in order to develop useful materials that we believe can help with peoples’ understanding of the disease. For more information on our work with patient groups, click here.

We partner with patient advocacy groups (PAGs) and patients to reinforce overall support for patients and the healthcare system.

The following patient advocacy groups (PAGs) provide extensive support for people living with and caring for those with breast cancer, and are also involved in funding vital breast cancer research. Moments That Count has had no input from these groups. We have listed these so you have access to as much information as possible.

Breast Cancer Now

At Breast Cancer Now we're here for anyone affected by breast cancer. Our breast cancer nurses, expertly trained staff and volunteers, and award-winning information make sure you can get the support you need to help you live well with the physical and emotional impact of breast cancer.

For breast cancer care, support and information, call us free on 0808 800 6000 or visit

Macmillan Cancer Support

We're here to help everyone living with cancer live life as fully as they can, providing physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.

For information, support or just someone to talk to, call 0808 808 00 00 or visit


Abcdiagnosis is an organisation and network offering peer to peer support for people with breast cancer. Aiming to reduce fear, anxiety and isolation, while supporting them to resume normal life, living both with and beyond cancer. At abcdiagnosis we are supporting primary and secondary breast cancer patients to make informed choices. Sharing information and up to date news on all aspects of breast cancer. We additionally support patients with an NHS signposted infographic for red flag signs and symptoms of secondary breast cancer which will also be produced in multiple languages and provide an abcd motivational exercise retreat for wellbeing. 

For information and support visit


METUPUK is the ONLY metastatic breast cancer (MBC) patient advocacy group in the UK.  We are working to improve outcomes for those living with MBC.  We are here to push and promote issues with secondary/metastatic breast cancer. Our objectives and strategy focus on the key areas that need to change.

We want MBC downgraded from an incurable disease to a chronic illness. We want people with MBC to gain access to the very best medicines to help them live longer and improve their quality of life. We ultimately work towards the day when MBC will be cured.

For more information, please visit

Make 2nds Count

Make 2nds Count is a UK-wide patient and family focused charity dedicated to giving hope to women and men living with secondary breast cancer.

We strive to do this by raising awareness and funding medical research that will contribute to advancing an increased quality of life for patients. Our interactive community programme supports patients and families affected by this incurable disease also known as metastatic breast cancer.

For more information on all on our research, support and education programmes visit or email [email protected]

Meet the patient advocates
making moments count

Follow the journeys of Mary, Jo, Claire, Laura and Juliet as they share their stories. Learn about their experiences so you know what you may experience in your own journey.

UK | OCTOBER 2022 | 124224-1



You know you best

Make your next appointment count

Your healthcare team is your best resource throughout your treatment. Talk openly and often with them about your doubts, questions and concerns. It might make you feel more in control if you take some time to plan for your appointment. Making notes before, during and after can help you retain information and make the most of your visits. We have developed a guide to support you in having these conversations with some tips to help you get the information you need.

Download your Moments That Count appointment guide.

Moments That Count has been developed and funded by Novartis Pharmaceuticals UK Limited. It has been created in collaboration with secondary breast cancer patients whose knowledge and insights have informed the content and direction for the campaign.

This website is part of a programme that is funded by Novartis Pharmaceuticals UK Limited. Novartis Pharmaceuticals UK Limited is a private limited liability company registered in England and Wales under number 119006. Registered office 2nd Floor, The WestWorks Building, White City Place, 195 Wood Lane, London, W12 7FQ. Use of this website is governed by our Terms of Use and the Cookies and Privacy Policy.

Reporting side-effects

If you get side effects with any medication you are taking, talk to your doctor, pharmacist or nurse.This includes any possible side effects not listed in the information leaflet that comes in the pack. You can report side effects via the Yellow Card Scheme at By reporting side effects, you can help provide more information on the safety of your medication.

©2022 Novartis Pharmaceuticals UK Ltd - UK | September 2022 | 124182-1 | This site is intended for an audience in the UK.